Delaware SB 362 — AN ACT TO AMEND TITLE 16 OF THE DELAWARE CODE RELATING TO A PARKINSON'S DISEASE REGISTRY.
Delaware, 153. SB 362: AN ACT TO AMEND TITLE 16 OF THE DELAWARE CODE RELATING TO A PARKINSON'S DISEASE REGISTRY.
Latest action
October 30, 2026 — Introduced and Assigned to Executive Committee in Senate
Summary
This Act establishes a statewide registry for Parkinson's disease and Parkinsonisms under the regulatory oversight of the Department of Health and Social Services, with operational responsibilities delegated to a partnership between the University of Delaware and the Delaware Health Information Network. To minimize administrative burdens on providers and leverage existing infrastructure, the Act mandates that healthcare practitioners, facilities, and clinical laboratories report occurrences of these conditions within 180 days of initial diagnosis or treatment. Furthermore, the legislation establishes strict data confidentiality protections, authorizes the sharing of de-identified data for qualified scientific research, requires an annual report to the General Assembly beginning January 1, 2029, and provides an enforcement mechanism through the Department for persistent noncompliance, which is a fine of $100 per day for each violation.
Sponsors
- Ray Seigfried — primary sponsor
Bill text
Bill Text Read version ↗ Read version ↗
Recorded votes
No roll-call votes were supplied for this bill. This does not imply that no vote occurred.
Legislative history
- Introduced and Assigned to Executive Committee in Senate
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